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Is It Fair to Keep a Severely Disabled Child Alive?

Most are aware of the boy who died in England this week after the appeals of the parents who fought to keep him alive. Are the facts what they are really trying to achieve? While no one wants to see their child taken, of course, one must look into the future to understand the life that one would have to live. There is also the question of who would take care of him when the parents are no longer in a position to provide for him?

In New South Wales, there is a big reaction to the government’s decision to privatize group homes in which disabled people are housed. This presents the other side of the debate.

Disabled children are usually placed in homes designed to look after them. Parents, on average, cannot cope with the demands of such a child, and not only when he grows into adulthood.

The weight of a disabled person who does not have the ability to move without support and cannot even use a toilet without help is impossible for elderly parents to manage. They are dependent on providers who can deal with this. So why are these people allowed to live when death in early life would surely be a better option?

Religious principles are at play here if children are allowed to die because of a handicap. Then there is the measure of incapacity and the arguments of right and wrong stir up the population even more. It can be seen from the level of public support for the parents of the aforementioned child who died shortly before his first birthday.

This is an issue that communities need to address, especially as the cost of long-term care for such people rises proportionately. The bottom line is what kind of life does such a person live. If there is no possibility of a life beyond the need of someone to do any task for them, it is such a bad thing for the parents who surrender them to their fate.

Keeping children alive on life support and being caught up in the emotions of the moment is not practical. The question is who decides when life is not worth living? It’s certainly too big a problem for even a court to rule on. It takes this into the realm of mercy killing and the dire consequences of thinking one has made a mistake. This is a test for everyone and only when one knows all the circumstances can such a decision be made.

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